Monday, January 7, 2013

Sometimes It Is Hard


I have been a bit absent lately and there are a couple of reasons for that.  FIRST Adeline is going to be a big sister!  We are a bit shocked and surprised with this news but we are now moving to a place of excitement.   I think between the holidays and feeling a bit yucky I have lost my motivation.  I am working hard to get it back.

Second news,  we found out this past Friday that Adeline will need heart surgery.  I am shocked and a bit overwhelmed.    When she was born we were told that her heart was fine she just had a PDA tube that took awhile to close off.  Recently the doctors detected a heart murmur and so she had an echo done this past Friday.   There they discovered a leaky valve.  This valve will continue to get worse and it must be repaired.  It is not an emergency but it must be done this year.  We are now deciding if it will before or after baby.  I am thinking before would be better.    Please pray for us as we walk through these times.       

19 comments:

  1. I am so sorry to hear about Adeline. I will keep you guys in my thoughts. Congrats on the new baby.

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  2. I am sending prayers! Congrats on the baby.

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  3. I will pray for the little Adeline... I have discovered your blog a few weeks ago and it is so useful also for me... I am happy for you all for the new baby... it will be exciting and wonderful, I am sure!
    And I am also sure that the surgery will be a success... You are in our heart!

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  4. Congratulations on the baby! I am sad to hear about Adeline's heart :-( Keep us posted.

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  5. Congratulations on your new baby! My daughter had open heart at 4 months for AVSD so she had leaky valves and a hole. She recovered so quickly and should not have to have another surgery. The fear before the surgery was most definitely hard. We had a very upfront doctor that explained he does this type of repair multiple times a day and his term was that it was no big deal. Not easy for the parent that is for sure, praying for a speedy recovery.

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  6. I'm so sorry to hear that Adeline will need an operation, but congratulations on your pregnancy. My thoughts are with you all and I hope everything goes as smoothly as these things can.

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  7. I saw your post on BBC yesterday. What shocking news. You will have so many good thoughts and prayers coming her way. Cora's heart surgery and the months leading up to it (she had it before she was 3 months old...) were some of the hardest days of my life. But the love and support of those around me sustained us all. Please keep us posted about the details.

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  8. So happy for you on the pregnancy. I am so sorry to hear about Adeline needing surgery. I will be praying for you all.

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  9. Congratulations on the pregnancy! And, I will keep Adeline in my prayers.

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  10. Just started following your blog - love all your activities and hope to put them to good use with my two kiddos. Brianne (with DS) is 2 1/2 and Bryce is 1 1/2....it's constant chaos for the most part.

    Wow - your last post is so honest and touching. CONGRATS on the pregnancy!!! It is tough work growing a baby so rest as much as you can and take it easy!

    I am soooooo sorry to hear about your daughter needing heart surgery. My baby girl was born with a heart defect and needed a surgery at 4 months old.....hardest thing i've ever had to do was handing her over to the nurses and surgeon that day............but they worked their magic and she is thriving now. Thoughts and prayers are with you and your family and the medical staff that will work their magic on your little lady.

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  11. Praying for you and the whole family! We love you.

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  12. Though period! I will pray for Adeline. I'm sure she will cope just fine with the surgery and she will have a stronger hart to face life afterwords.
    Congratulation for the pregnancy, the new baby is really lucky to be part of your wonderful family!
    A hug

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  13. CONGRATULATIONS! I will praying for Adeline and your family as you prepare for surgery. I am all too aware of how scary that time can be. Call me anytime.

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  14. Oh Sandy... i miss you! I thought about you in these days, asking if everything was all right... now i know! i'm so so happy for the pregnacy, Adeline is amazing and she'll be an incredible big sister!
    for the surgery... i just image how you feel... but everything will be fine, and better, so... i'll pray for you!
    hugs from Italy

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  15. I have a little Ds one also that had to have heart surgery (2 actually..hypoplastic left heart syndrome...just be glad you don't have it)....BUT BUT BUT.....she is here today and her heart is perfect!!! Heart surgery is no fun, but you will become a stronger person because of it!! and, I would have it before baby!!! Congratulations...I LOVE your blog but just wish I was as good as you at getting it all done.

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  17. Congratulations on the baby and will be praying for Adeline's surgery! Love your ideas.

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  18. Congrats! We had two babies after Noah. I know everybody is different, but for me it was very healing to have a "typical" pregnancy and birth experience post Down syndrome.

    I'm sorry to hear about Adeline's cardiac issues, but praise the Lord that y'all found out what is going on. And thank you for sharing the info. Noah was released from the cardiologist after his hole closed up, and I think his pediatrician feels like the cardiology issue is resolved. But we have a friend who lost their 6-year-old son with DS unexpectedly when he passed away in his sleep. It turned out his heart gave out even though they were not aware of any cardiac problems. I think some time soon the studies will show that some of these kids with DS go on to develop cardiac problems and should be followed more closely. Was Adeline having cardiac issues or did it show up on routine exam?

    You are fortunate to have caught it on the front end - things are so much easier to treat when they are dealt with before a medical crisis occurs. And I'm with you - treat it before the new baby comes. You'll be able to get a TON of rest while you stay with her in the hospital and you can focus on her without having to also care for a newborn.

    We'll be praying for you all.

    Blessings,
    Alyson

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  19. I'm excited about your pregnancy, and I hope you're feeling well again now. I'm praying that Adeline's surgery goes well and she heals quickly.

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